As many of you know, my twin sister has had a major brain operation looming for a few months. For those that don’t know, this is the situation in a nut shell. My twin was born with brain damage. This damage causes seizures that have increased in severity over the years. It isn’t epilepsy…her diagnosis is all her own.
She’s had years of heavy medication, magnetic implants, and many medically induced comas to try to control the damage that multiple seizures can do to delicate brain tissue and nerve endings.
But all of that is not working anymore.
So, now, here we are.
There are big negatives. It’s a seriously frightening surgery. I can’t kid anyone about that. They have to go in and remove a portion of her brain in an area where very important things happen. To put it bluntly, everyone would feel much better if she could have had the surgery where a whole hemisphere of her brain was removed. It will take 2.5 hours just to hook her up to all the monitors they need to use.
They took her in a 6am and they will likely still be going at 6pm this evening.
They are doing one surgery instead of two because we both have a clotting disorder, which is not a good thing when you are dealing with brain surgery.
My mom and sister and her husband are with her. I was very sick this week and so between that and someone needing to be with my dad, I stayed at home.
There are positives in all this. We all have a lot of faith. Which matters. She has an excellent surgical team in an excellent hospital that she has been treated at since she was diagnosed with brain damage and her seizure disorder at 16.
Her doctors are optimistic.
And well…it’s this or her brain will be destroyed by the seizures and she’ll die.
I know that last one doesn’t actually sound positive but when you have to pull the trigger on a surgery this complex and with such high risks it actually makes things easier.
So, there you have it.
I am much quieter and private when issues are not my own, but I also know there are many concerned family members and friends who have asked to be kept in the loop so I’ll keep you as updated as I can.
Thank you for all the love, thoughts and prayers.